Question:
Hey All, I just got back from the Dr and he started me on a new medicine that I am not familiar with and I am hoping y’all can give me some insight on it – Topomax – I read on rx.com it is used for seizures but I don’t have them – what other things is it used for and what can I expect in the way of side effects? Thanks in advance Polly His eye is on the sparrow….. and I know He watches me… Polly
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>I just got back from the Dr and he started me on a new medicine that I am not >familiar with and I am hoping y’all can give me some insight on it – Topomax >- >I read on rx.com it is used for seizures but I don’t have them – what other >things is it used for and what can I expect in the way of side effects?
It’s also being used for Neuropathy, like Neurontin is being used for. It’s in that class of meds. It can cause weight loss, unlike the other meds. Topamax is used for seizures, but many meds have "off label" uses, and that’s what Topamax, Neurontin, Tegretol, and Depakote (forgive me if I have left any out) are being used for; Neuropathy, migraines, and other things. I recommend WebMD.com…it’s a lot more thorough than rxlist.com when it comes to explaining medications. It’s also just a great site in general. I would type more but I cant see the screen. Nikki ******* I am who I am Your approval is neither Desired nor required ******* When you throw mud at someone, remember you are the one who is losing ground. ******* If anger is a crutch, then why cant I hit people with it? *******
Response:
Hi Polly .. let me know if the Topomax helps your pain .. my pain Dr just told me he wants to try me on Neurontin .. and it’s an anti-seizure med,too. I’m leary and scared to start it 
thanks and good luck – Hide quoted text — Show quoted text – > Hey All, > I just got back from the Dr and he started me on a new medicine that I am not > familiar with and I am hoping y’all can give me some insight on it – Topomax – > I read on rx.com it is used for seizures but I don’t have them – what other > things is it used for and what can I expect in the way of side effects? > Thanks in advance > Polly > His eye is on the sparrow….. > and I know He watches me… > Polly
Response:
Hey Polly .. have you tried the Topomax yet ? I got my script filled for Neurontin (same type med {anti-seizure} as your Topomax) and it’s for ONE 300mg a day at bedtime..I don’t see how that small a dose can help my cervical spine pain .. anxious to hear if you’re having any luck ! – Hide quoted text — Show quoted text – > Hey All, > I just got back from the Dr and he started me on a new medicine that I am not > familiar with and I am hoping y’all can give me some insight on it – Topomax – > I read on rx.com it is used for seizures but I don’t have them – what other > things is it used for and what can I expect in the way of side effects? > Thanks in advance > Polly > His eye is on the sparrow….. > and I know He watches me… > Polly
Response:
>Hey Polly .. > have you tried the Topomax yet ? I
I have started it and I do seem to be resting better. I hope yours will help you as well. Polly His eye is on the sparrow….. and I know He watches me… Polly
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BUT are you having less pain during the day ? I’m so happy it is helping you have better nights ! – Hide quoted text — Show quoted text ->Hey Polly .. > have you tried the Topomax yet ? I > I have started it and I do seem to be resting better. I hope yours will help > you as well. > Polly > His eye is on the sparrow….. > and I know He watches me… > Polly
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>BUT are you having less pain during the day ?
nope I see no difference during the day – unfortunantly- I only take it at bedtime so far… Polly His eye is on the sparrow….. and I know He watches me… Polly
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>Hey Polly .. > have you tried the Topomax yet ? I got my script filled for Neurontin (same type >med {anti-seizure} as your Topomax) and it’s for ONE 300mg a day at bedtime..
You have to start small and titrate up. I started at one 100mg at bedtime the first day (three days? it was a long time ago), then one in the morning and one at bedtime, then three equally spaced. When that didn’t do anything, I went to 200mg 3x/day, then 300. Just kept going up, was good at 600mg 3x/day for a while, but then had to increase that. Now I’m at 3000 mg/day in 4 doses, and the last week has been pretty miserable, so I don’t know where to go from here. >I don’t see how that small a dose can help my cervical spine pain ..
I think that that small a dose helps (sometimes). I also think it only helps if it’s really nerve pain, it doesn’t do anything for other types of pain. >anxious to hear if you’re having any luck !
Same here. And for you too. Jon Miller
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me,too … I don’t understand why I have to take mine (Neurontin 300mg) at bedtime .. it has a 1/2 life of 5-7 hours .. so that means.. if I go to bed at 10PM, by 10AM I only have about 75mg in my system .. I’m going to ask the Dr about that on Thursday,,I thought maybe the pharmicist had not read the Dr’s script right .. ‘ at bedtime’ ..
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I’m taking Neurontin 300mg, 3 times a day. Dick
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IS it helping ? I can’t tell if the Neurontin is doing any good at all since I take ONE at bedtime.. The stuff sure is expensive ! I don’t have prescription plan so it’s all out of my pocket.. if my Dr ups the amount I take , I’ll have to research on Inet drugstores ..it’s $40 for 30 here and 3 a day sure would be expensive ! but worth it IF it relieved the pain ! – Hide quoted text — Show quoted text – > I’m taking Neurontin 300mg, 3 times a day. > Dick
Response:
anita stated: > IS it helping ? I can’t tell if the Neurontin is doing any good at all > since I take ONE at bedtime.. > The stuff sure is expensive ! I don’t have prescription plan so it’s > all out of my pocket.. if my Dr ups the amount I take , I’ll have to > research on Inet drugstores ..it’s $40 for 30 here and 3 a day sure > would be expensive ! but worth it IF it relieved the pain !
Hello Anita, I’m sorry, I must have missed your question earlier. I am taking Neurontin for CDH, and it is the *only* drug that has helped me. It has not removed the pain entirely, but it has definitely saved my life. I am taking 800mg x 3 = 2400mg per day. From what I understand, your one at bedtime will not be enough to get into your system. Anyone else know about that? Anyhow, I think that most prescription plans give you a month’s supply, so I currently pay $15 for 90 pills–don’t think I’m gloating because I’m also paying $700/month just to keep my medical insurance and that’s absolutely draining my life’s savings… goodbye house, goodbye retirement . For me personally, I would have no choice but to pay the $120/month. Like I said, for me, it saved my life. If you have the $120, you may want to try it for a month as you should know by then if it’s going to help. Talk to your doctor; you’ll need a plan for ramping up your dosage (you can’t do it all at once). Also, ramp yourself up, and then if you find relief, slowly ramp yourself back down to find the efficacy threshold. I know that 4800mg does me no more good than 2400mg, but it seems to me that I have more frequent flare-ups when I only use 2000mg. Everyone’s different, so you need to experiment within the supervision of your doctor. Why pay for or take excess medication, right? Good luck, and I hope you can find some relief! -Deva
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Anita, I think they have a patient assistant program. I am going to check on that tomorrow. My doc said he would fill out the paper work if I got the form and if they have it. If they do I will post it tomorrow. Bonner
– Hide quoted text — Show quoted text -> IS it helping ? I can’t tell if the Neurontin is doing any good at all > since I take ONE at bedtime.. > The stuff sure is expensive ! I don’t have prescription plan so it’s > all out of my pocket.. if my Dr ups the amount I take , I’ll have to > research on Inet drugstores ..it’s $40 for 30 here and 3 a day sure > would be expensive ! but worth it IF it relieved the pain ! > I’m taking Neurontin 300mg, 3 times a day. > Dick
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Also neurontin comes in a 100ml capsule. If this med is what you are going to take you might see if you can break it down to 3 times a day. Having your dose only at one time will not give you the relief you need. So bottom-line is and your doc should know this is 3 times a day is better then one time a day. Bonner
– Hide quoted text — Show quoted text -> me,too … I don’t understand why I have to take mine (Neurontin 300mg) > at bedtime .. it has a 1/2 life of 5-7 hours .. so that means.. if I go > to bed at 10PM, by 10AM I only have about 75mg in my system .. I’m going > to ask the Dr about that on Thursday,,I thought maybe the pharmicist had > not read the Dr’s script right .. ‘ at bedtime’ ..
Response:
Anita, I am doing drug searches right now, because I no longer have prescription coverage. so I thought I would share this with you. http://auto.search.msn.com/results.asp?cfg=SMCINITIAL&RS=CHECKED&v=1&… FORM=AS5&q=pfizer Share Card Program card. Scroll down to 8 pfizer products. They have 1.800 #. They charge 15 dollars only if you qualify. Hope this helps. Oh hell here is the number and questions Q2) How does a patient apply for the Share Card Program? A2) To enroll, patients simply call the toll-free enrollment and information hotline (1.800.717.6005). Trained operators initially screen for caller eligibility and then mail an enrollment kit to potential participants. Notably, operators will also help callers locate health and Medicare-related resources in their communities.
– Hide quoted text — Show quoted text -> Anita, > I think they have a patient assistant program. I am going to check on that > tomorrow. My doc said he would fill out the paper work if I got the form > and if they have it. If they do I will post it tomorrow. > Bonner > IS it helping ? I can’t tell if the Neurontin is doing any good at all > since I take ONE at bedtime.. > The stuff sure is expensive ! I don’t have prescription plan so it’s > all out of my pocket.. if my Dr ups the amount I take , I’ll have to > research on Inet drugstores ..it’s $40 for 30 here and 3 a day sure > would be expensive ! but worth it IF it relieved the pain ! > > I’m taking Neurontin 300mg, 3 times a day. > > Dick
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Anita, Okay first off I do not know if there is any assistance, but there are for other drugs. For example: Lets take this drug Norvac or neurontin 1) I called Pharmacy to see who made the drug 2) I asked if they had the makers phone number. In my case they did not. 3) After finding out you can call the 1800 # to see if they have a 1800# for that company Now back to Norvac & neurontin Instead of calling the 1800# I found out it was made by parke-davis which is also considered Pfizer. I went to Pfizer and from there I went to Pfizer products. I clicked on the share card program. Then it told me how much I would pay if I qualified. If I qualified it would be 15 dollars per month. Just a flat fee. 4) I need to find out what their cut off is for assistance. So I scrolled down and found it to be 24000 5) first off I needed my last year tax return. I then needed to know how much I made for 2001. Since we filed joint we made XXXX amount of dollars therefore we made more then 24,000. So we do not qualified. This is where it tells me how much I can make per couple or single. Pfizer recognized that Medicare-enrolled patients who have individual gross incomes of $18,000 (or $24,000 as couples) are truly struggling to afford essential medicines. For example, members of this demographic spend less than $600 per year on drugs-about half of what more affluent individuals spend.1 The consequence is a disproportionate share of poor health outcomes for those Medicare patients most in need. Accordingly, the eligibility threshold was set at a maximum annual income of $18,000 for individuals or $24,000 for couples who file jointly 6)Now if we did qualify I also found out something else they are the makers of another drug I take. So check and see if this applies also. I scrolled on down to find other products of theirs. Patients enrolled in the Share Card Program will have access to a multiplicity of prescription drugs manufactured or marketed by Pfizer, including many of those most commonly prescribed to seniors, such as Lipitor
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